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PANS/PANDAS UK Charity

Description

PANS (paediatric autoimmune neuropsychiatric syndrome) and PANDAS (paediatric autoimmune neuropsychiatric syndrome associated with strep) are devastating neuropsychiatric conditions that are currently poorly recognised, diagnosed and supported both medically and in schools.  

One estimate suggests that up to 1 in 200 children suffer from this condition.

 

Resources for parents including diagnostic criteria and details of local support groups. 

Resources for Medical professionals  

Resources for teachers and Schools 

Teacher training package 

Facebook group for parents/caregivers 

Facebook group for Young People age 12-17 with the condition. 

Facebook group for Adults 

Links to further Research 

Advocacy and support from the charity

Address and contact information

Contact Name
Paula Scott
Contact Position
Administration Manager
E-mail
paula.scott@panspandasuk.org
Telephone
07425856181
Website
My service's website
Notes

Any Children aged 4 to 19 who are displaying symptoms associated with the condition and/or diagnosed with the conditions.  Affected children can be in mainstream, alternative, specialist provision or electively home educated.

Send email 07425856181

How to get there

Notes

All of Lancashire covered.  We provide support via our Facebook group PANS PANDAS UK.

Other Details

Costs

Details
Free at point of access, supported through the PANS/PANDAS UK Charity.

Availability

Referral required
NoNo
Referral Details

Self-referral, Education provider (consent obtained), SEND Specialists and Educational Psychologists.

 

https://www.panspandasuk.org/for-educators

Other notes

Logo

https://static.wixstatic.com/media/fb3b30_fd0a7b2c402c4da59930630b57da694d~mv2.jpg/v1/fill/w_200,h_63,al_c,q_80,usm_0.66_1.00_0.01/fb3b30_fd0a7b2c402c4da59930630b57da694d~mv2.webp

 

Poster - Could a child in your school have PANS or PANDAS?

https://static.wixstatic.com/media/5769d0_81c345ac73b34ece84dca5a6f8c0c5bb~mv2.jpg/v1/fill/w_353,h_499,al_c,q_80,usm_0.66_1.00_0.01/Could%20a%20child%20in%20your%20school%20have%20PANS%20o.webp 

 

Local Offer

Local Offer Age Bands
0-4 years old
5-11 years old
11-16 years old
16-19 years old